References and sources

Module 1

World Health Organization. (2006). Defining Sexual Health: Report of technical consultation on sexual health. Retrieved from: https://doi.org/http://www.who.int/reproductivehealth/publications/sexual_health/defining_sexual_health.pdf

The Genderbread Person. Retrieved from: https://www.genderbread.org/

Male reproductive system. Retrieved from: https://www.healthdirect.gov.au/male-reproductive-system

Erection and Ejaculation. Retrieved from: https://www.youtube.com/watch?v=YOvHKSxxuYw

Lever, J., Frederick, D. A., & Peplau, L. A. (2006). Does size matter? Men’s and women’s views on penis size across the lifespan. Psychology of Men &Amp; Masculinity, 7(3), 129–143. https://doi.org/10.1037/1524-9220.7.3.129

Female reproductive system. Retrieved from: https://www.merckmanuals.com/home/women-s-health-issues/biology-of-the-female-reproductive-system/female-internal-genital-organs and https://www.merckmanuals.com/home/women-s-health-issues/biology-of-the-female-reproductive-system/female-external-genital-organs

The clitoris. Retrieved from: https://www.youtube.com/watch?v=J_3OA_VZVkY&t=123s

The Great Wall of Vagina. Retrieved from: https://www.greatwallofvagina.co.uk/

Erogenous zones. Retrieved from: https://www.healthline.com/health/healthy-sex/erogenous-zones

Sexual response cycle. Retrieved from: https://study.com/learn/lesson/sexual-response-cycle-overview-phases-master-johnson.html

Hogue, J., Rosen, N., Bockaj, A., Impett, E., & Muise, A. (2019). Sexual communal motivation in couples coping with low sexual interest/arousal: Associations with sexual well-being and sexual goals. PLOS ONE14(7), e0219768. doi: 10.1371/journal.pone.0219768

SexLab. Cognitive-behavioral treatment for Erectile Dysfunction (CBTED) – Treatment Manual

Janssen, E., & Bancroft, J. (2007). The Dual Control Model: the role of sexual inhibition & excitation in sexual arousal and behavior. In E. Janssen (Ed.), The psychophysiology of sex (Vol. 15, pp. 197–222). Bloomington: Indiana University press.

The Pleasure project: https://thepleasureproject.org/ World Association of Sexual Health (2021). Declaration of Sexual Pleasure. Retrieved from: https://worldsexualhealth.net/resources/declaration-on-sexual-pleasure/

Module 2

Rowe, J. W., & Kahn, R. L. (1997). Successful aging. The Gerontologist, 37(4), 433-440. https://doi.org/10.1093/geront/37.4.433

Torregrosa-Ruiz, M., Gutiérrez, M., Alberola, S., & Tomás, J. M. (2021). A Successful Aging Model Based on Personal Resources, Self-Care, and Life Satisfaction. The Journal of Psychology, 1-18. https://doi.org/10.1080/00223980.2021.1935676

Štulhofer, A., Hinchliff, S., Jurin, T., Hald, G. M., & Traeen, B. (2018). Successful aging and changes in sexual interest and enjoyment among older european men and women. Journal of Sexual Medicine, 15(10), 1393-1402. doi:10.1016/j.jsxm.2018.08.011

Palmore, E. (1979). Predictors of Successful Aging. The Gerontologist, 19(5), 427-431. https://doi.org/10.1093/geront/19.5_Part_1.427 %J The Gerontologist

Carpenter, L., & DeLamater, J. (2012). Studying gendered sexuality over the life course: A conceptual framework. In L. Carpenter & J. DeLamater (Eds.), Sex for life: From virginity to Viagra, how sexuality changes throughout our lives. New York, NY: NYU Press.

DeLamater, J. (2012). Sexual expression in later life: A review and synthesis. Journal of Sex Research, 49, 125–141.

DeLamater, J., & Koepsel, E. (2015). Relationships and sexual expression in later life: a biopsychosocial perspective. Sexual and Relationship Therapy, 30(1), 37-59.

Ginsberg, T. B., Pomerantz, S. C., Kramer-Freeley, V. (2005). Sexuality in older adults: behaviours and preferences. Age and Ageing, 34, 475–480.

Herbenick, D., Reece, M., Schick, V., Sanders, S.A., Dodge, B., & Fortenberr, J.D. (2010). Sexual behavior in the United States: Results from a national probability sample of men and women ages 14 to 94. Journal of Sexual Medicine, 7(5), 255-265.

Hillman, J. (2012). Sexuality and Aging. Clinical perspectives. Springer, New York.

Lindau, S. T., Schumm, L. P., Laumann, E. O., Levinson, W., O’Muircheartaigh, C.A., & Waite, L.J. (2007). A study of sexuality and health among older adults in the United States. The New England Journal of Medicine, 357(8), 762-774.

University of Sheffield. (2021). Normal sexual changes with age. Age Sex and You. http://www.agesexandyou.com/

Waite, L.J., Laumann, E.O., Das, A., & Schumm, L.P. (2009). Sexuality: Measures of partnerships, practices, attitudes, and problems in the National Social Life, Health, and Aging Project. Journals of Gerontology: Social Sciences, 64B(1), i56-i66.

Association of American Retired Persons (AARP). (2005). Sexuality at midlife and beyond: 2004 update of attitudes and behaviors. Washington, DC: Author.

Ambler, D. R., Bieber, E. J., & Diamond, M. P. (2012). Sexual function in elderly women: A review of current literature. Reviews in Obstetrics and Gynecology, 5, 16–27.

Avis, N. E., Stellato, R., Crawford, S., Johannes C., & Longcope C. (2000). Is there an association between menopause status and sexual functioning? Menopause, 7:297–309. doi: 10.1097/00042192-200007050-00004

Baikie, E. (2002). The impact of dementia on marital relationships. Sexual and Relationship Therapy, 17(3), 289–299

Bell, S., Reissing, E. D., Henry, L. A., & VanZuylen, H. (2017). Sexual Activity After 60: A Systematic Review of Associated Factors. Sexual Medicine Reviews, 5(1), 52-80. https://doi.org/https://doi.org/10.1016/j.sxmr.2016.03.001

Black, B., Muralee, S., & Tampi, R. R. (2005). Inappropriate sexual behaviors in dementia. Journal of Geriatric Psychiatry and Neurology, 18(3):155–62.

DeLamater, J., & Moorman, S. (2007). Sexual behavior in later life. Journal of Aging and Health, 19, 921–945.

DeLamater, J., & Sill, M. (2005). Sexual desire in later life. Journal of Sex Research, 42, 138–149.

Gillespie, B. J. (2017). Correlates of sex frequency and sexual satisfaction among partnered older adults. Journal of Sex & Marital Therapy, 43(5), 403-423.

Hartmans, C., Comijs, H., & Jonker, C. (2014). Cognitive functioning and its influence on sexual behaviour in normal aging and dementia. International Journal of Geriatric Psychiatry, 29(5), 441–446.

Hughes, A. K., Rostant, O. S., & Pelon, S. (2015). Sexual problems among older women by age and race. Journal of Women’s Health, 24, 663–669.

Kennedy, G. J., Haque, M., & Zarankow, B. (1997) Human Sexuality in Late Life, International Journal of Mental Health, 26(1), 35-46, doi: 10.1080/00207411.1997.11449385

Kontula, O., & Haavio-Mannila, E. (2009). The impact of aging on human sexual activity and sexual desire. Journal of Sex Research, 46, 46–56.

Meston, C. M. (1997). Aging and sexuality. Western Journal of Medicine167, 285-290.

Montemurro, B., & Gillen, M. M. (2013). Wrinkles and sagging flesh: Exploring transformations in women’s sexual body image. Journal of Women and Aging, 25, 3–23. doi:10.1080/08952841.2012.720179

Padoani, W., Dello Buono, M., Marietta, P., Scocco, P., Zaghi, P. C., & De Leo, D. (2000). Influence of cognitive status on the sexual life of 352 elderly italians aged 65–105 years. Gerontology, 46, 258-265.

Sanchez, D. T., & Kiefer, A. (2007). Body concerns in and out of the bedroom: Implications for sexual pleasure and problems. Archives of Sexual Behavior, 36, 808– 820.

Sherwin, B. B., & Gelfand, M. M. (1985). Differential symptom response to al consensus development conference on female sexual dys- parental estrogen and androgen in the surgical menopause. American Journal of Obstetrics & Gynecoly, 151, 153-60.

Srinivasan, S., Glover, J., Tampi, R.R. et al. (2019) Sexuality and the Older Adult. Current Psychiatry Reports, 21(97). doi: https://doi.org/10.1007/s11920-019-1090-4

Stanfield, M. H., & Yelland, E. L. (2020). When Allie Forgot Noah: Perspectives of Healthy Partner Considerations in Cases of Dementia. The American Journal of Family Therapy, 48(4), 369-384. https://doi.org/10.1080/01926187.2020.1731380

Syme, M. L., Cohn, T. J., Stoffregen, S., Kaempfe, H., & Schippers, D. (2019). “At My Age … ”: Defining Sexual Wellness in Mid- and Later Life. The Journal of Sex Research, 56(7), 832-842. https://doi.org/10.1080/00224499.2018.1456510

Syme, M.L., Klonoff, E.A., Macera, C.A., Brodine, S.K. (2013). Predicting sexual decline and dissatisfaction among older adults: the role of partnered and individual physical and mental health factors. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 68(3), 323–332, doi:10.1093/geronb/gbs087

Trudel, G., Turgeon, L. & Piché, L. (2000) Marital and sexual aspects of old age, Sexual and Relationship Therapy, 15:4, 381-406, doi: 10.1080/713697433

Walsh, K. E., & Berman, J. R. (2004). Sexual dysfunction in the older woman: An overview of the current understanding and management. Drugs & Aging, 21(10), 655-675.

Zeiss, R.A., Delmonico, R.L, Zeiss, A.M., & Dornbrand, L. (1991) Psychologic disorder and sexual dysfunction in elders. Clinics in Geriatric Medicine, 7(1), 133-151. PMID: 2004286.

Allemani, C., Matsuda, T., Di Carlo, V., Harewood, R., Matz, M., Nikšić, M., Bonaventure, A., Valkov, M., Johnson, C. J., Estève, J., Ogunbiyi, O. J., Azevedo e Silva, G., Chen, W. Q., Eser, S., Engholm, G., Stiller, C. A., Monnereau, A., Woods, R. R., Visser, O., . . . Lewis, C. (2018). Global surveillance of trends in cancer survival 2000–14 (CONCORD-3): analysis of individual records for 37 513 025 patients diagnosed with one of 18 cancers from 322 population-based registries in 71 countries. The Lancet, 391(10125), 1023–1075. https://doi.org/10.1016/s0140-6736(17)33326-3   

Bray, F., Ferlay, J., Soerjomataram, I., Siegel, R. L., Torre, L. A., & Jemal, A. (2018). Global cancer statistics 2018: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA: A Cancer Journal for Clinicians, 68(6), 394–424. https://doi.org/10.3322/caac.21492   

Hardcastle, J. D. (1993). Treatment. Colorectal Cancer, 17–25. https://doi.org/10.1007/978-3-642-78225-1_7 

Lewandowska, A., Rudzki, G., Lewandowski, T., Stryjkowska-Góra, A., & Rudzki, S. (2022). Risk Factors for the Diagnosis of Colorectal Cancer. Cancer Control, 29, 107327482110566. https://doi.org/10.1177/10732748211056692  

Meyerhardt, J. A., Niedzwiecki, D., Hollis, D., Saltz, L. B., Hu, F. B., Mayer, R. J., Nelson, H., Whittom, R., Hantel, A., Thomas, J., & Fuchs, C. S. (2007). Association of Dietary Patterns With Cancer Recurrence and Survival in Patients With Stage III Colon Cancer. JAMA, 298(7), 754. https://doi.org/10.1001/jama.298.7.754

Colorectal Cancer Information | Understanding Colorectal Cancer. Retrieved from: https://www.cancer.org/cancer/colon-rectal-cancer.html

How does colorectal cancer develop? Retrieved from: https://youtu.be/OJ5UhiiXEpc

How is CRC diagnosed/detected? Retrieved from: https://www.youtube.com/watch?v=WWbeQCUh418

Averyt, J. C., & Nishimoto, P. W. (2014). Psychosocial issues in colorectal cancer survivorship: the top ten questions patients may not be asking. Journal of gastrointestinal oncology, 5(5), 395–400. https://doi.org/10.3978/j.issn.2078-6891.2014.058

Cotrim, H., & Pereira, G. (2008). Impact of colorectal cancer on patient and family: Implications for care. European Journal of Oncology Nursing, 12(3), 217–226. https://doi.org/10.1016/j.ejon.2007.11.005

Denlinger, C. S., & Barsevick, A. M. (2009). The Challenges of Colorectal Cancer Survivorship. Journal of the National Comprehensive Cancer Network, 7(8), 883–894. https://doi.org/10.6004/jnccn.2009.0058

Kenderian, S., Stephens, E., & Jatoi, A. (2013). Ostomies in rectal cancer patients: what is their psychosocial impact? European Journal of Cancer Care, 23(3), 328–332. https://doi.org/10.1111/ecc.12133

Grant, M., McMullen, C. K., Altschuler, A., Mohler, M. J., Hornbrook, M. C., Herrinton, L. J., Wendel, C. S., Baldwin, C. M., & Krouse, R. S. (2011). Gender Differences in Quality of Life Among Long-Term Colorectal Cancer Survivors With Ostomies. Oncology Nursing Forum, 38(5), 587–596. https://doi.org/10.1188/11.onf.587-596

What is a Colostomy? Retrieved from: https://www.youtube.com/watch?v=XscbQTemf_g

What is a Ileostomy? Retrieved from: https://www.youtube.com/watch?v=iAG9SW7Pc_s

El-Shami, K., Oeffinger, K. C., Erb, N. L., Willis, A., Bretsch, J. K., Pratt-Chapman, M. L., Cannady, R. S., Wong, S. L., Rose, J., Barbour, A. L., Stein, K. D., Sharpe, K. B., Brooks, D. D., & Cowens-Alvarado, R. L. (2015). American Cancer Society Colorectal Cancer Survivorship Care Guidelines. CA: A Cancer Journal for Clinicians, 65(6), 427–455. https://doi.org/10.3322/caac.21286

Nakash, O., Levav, I., Aguilar-Gaxiola, S., Alonso, J., Andrade, L. H., Angermeyer, M. C., Bruffaerts, R., Caldas-de-Almeida, J. M., Florescu, S., de Girolamo, G., Gureje, O., He, Y., Hu, C., de Jonge, P., Karam, E. G., Kovess-Masfety, V., Medina-Mora, M. E., Moskalewicz, J., Murphy, S., . . . Scott, K. M. (2013). Comorbidity of common mental disorders with cancer and their treatment gap: findings from the World Mental Health Surveys. Psycho-Oncology, 23(1), 40–51. https://doi.org/10.1002/pon.3372

Szezepkowski, M. (2002). Do we still need a permanent colostomy in XXI-st century? Acta Chirurgica Iugoslavica, 49(2), 45–55. https://doi.org/10.2298/aci0202045s

Speck, R. M., Courneya, K. S., Mâsse, L. C., Duval, S., & Schmitz, K. H. (2010). An update of controlled physical activity trials in cancer survivors: a systematic review and meta-analysis. Journal of Cancer Survivorship, 4(2), 87–100. https://doi.org/10.1007/s11764-009-0110-5

Marrs, J. A., & Krebs, L. (2006). What Should I Say? Talking With Patients About Sexuality Issues. Clinical Journal of Oncology Nursing, 10(3), 313–315. https://doi.org/10.1188/06.cjon.313-315

Flynn, K. E., Jeffery, D. D., Keefe, F. J., Porter, L. S., Shelby, R. A., Fawzy, M. R., Gosselin, T. K., Reeve, B. B., & Weinfurt, K. P. (2010). Sexual functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS®). Psycho-Oncology, 20(4), 378–386. https://doi.org/10.1002/pon.1738

McKee, A. L., & Schover, L. R. (2001). Sexuality Rehabilitation. Cancer, 92(S4), 1008–1012. https://doi.org/10.1002/1097-0142(20010815)92:4+<1008::AID-CNCR1413>3.0.CO;2-2

Stulz, A., Lamore, K., Montalescot, L., Favez, N., & Flahault, C. (2020). Sexual health in colon cancer patients: A systematic review. Psycho-Oncology, 29(7), 1095–1104. https://doi.org/10.1002/pon.539

Lifestyle series – Love and sex for people with a stoma. Hollister. https://www.networks.nhs.uk/nhs-networks/sexual-rehabilitation-after-cancer/resources-1/patient-information-leaflets/patient-information-for-ostomates/love%20and%20sex%20with%20a%20stoma.pdf

Milbury, K., Cohen, L., Jenkins, R., Skibber, J. M., & Schover, L. R. (2012). The association between psychosocial and medical factors with long-term sexual dysfunction after treatment for colorectal cancer. Supportive Care in Cancer, 21(3), 793–802. https://doi.org/10.1007/s00520-012-1582-9

Ussher, J. M., Perz, J., & Gilbert, E. (2015). Perceived causes and consequences of sexual changes after cancer for women and men: a mixed method study. BMC Cancer, 15(1). https://doi.org/10.1186/s12885-015-1243-8

Reese, J. B., Handorf, E., & Haythornthwaite, J. A. (2018). Sexual quality of life, body image distress, and psychosocial outcomes in colorectal cancer: a longitudinal study. Supportive Care in Cancer, 26(10), 3431–3440. https://doi.org/10.1007/s00520-018-4204-3

Tenfelde, S., Hayden, D., & Albaugh, J. (2017). Sexual Dysfunction and Intimacy for Ostomates. Clinics in Colon and Rectal Surgery, 30(03), 201–206. https://doi.org/10.1055/s-0037-1598161

MacDonald, L. D., & Anderson, H. R. (1985). The health of rectal cancer patients in the community. European journal of surgical oncology: the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology, 11(3), 235–241.

About stroke. Retrieved from: https://www.nhs.uk/conditions/stroke/

What is stroke (healthsketch). Retrieved from: https://www.youtube.com/watch?v=ryIGnzodxDs

Tamam, Y., Tamam, L., Akil, E., Yasan, A., & Tamam, B. (2008). Post-stroke sexual functioning in first stroke patients. European Journal of Neurology, 15(7), 660–666. doi: 10.1111/j.1468-1331.2008.02184.x

Module 3

SexLab. Cognitive-behavioral treatment for Erectile Dysfunction (CBTED) – Treatment Manual

Internalized stigma. Retrieved from: https://clinicaltrials.gov/ct2/show/NCT01259427

Nobre, P., & Pinto-Gouveia, J. (2006). Dysfunctional sexual beliefs as vulnerability factors for sexual dysfunction. Journal of Sex Research, 43(1), 68–75. doi: 10.1080/00224490609552300

Baer, R. A. (2003). Mindfulness training as a clinical intervention: A conceptual and

empirical review. Clinical Psychology: Science and Practice, 10(2), 125-143. doi:

10.1093/clipsy/bpg015

Gaspar, V. (2015). Aqui e Agora: Mindfulness. Lisboa: Matéria Prima

The Pleasure project: https://thepleasureproject.org/

Neff, K. D., & Dahm, K. A. (2015). Self-compassion: What it is, what it does, and how it relates to mindfulness. In B. O. M. Robinson, B. Meier (Ed.), Handbook of Mindfulness and Self-Regulation (pp. 121–140). New York: Springer

Personal assistance. Retrieved from: https://www.independentliving.org/personal-assistance

Module 4

Owens, T., & De Than, C. (2014). Supporting disabled people with their sexual lives: a clear guide for health and social care professionals. London: Jessica Kingsley Publishers

Nobre P (2006) – Disfunções Sexuais – Teoria, Investigação e Tratamento. CLIMEPSI Editores, Lisboa.

Urinary incontinence. Retrieved from: https://www.mayoclinic.org/diseases-conditions/urinary-incontinence/symptoms-causes/syc-20352808

Brandenburg, D., Grover, L., & Quinn, B. (2005). Intimacy & Sexuality for Cancer Patients and their Partners. Pan Birmingham Cancer Network. https://breastcancernow.org/sites/default/files/intimacy_and_sexuality_for_cancer_patients_and_their_partners.pdf  

Galt, E., & Hill, H. (2002). What about sex? For people with a stoma and their partners. Dansac Ltd. https://www.dansac.be/-/media/files/dansac/uk/2009-05-12_what_about_sex_en.ashx

Lifestyle series – Love and sex for people with a stoma. Hollister. https://www.networks.nhs.uk/nhs-networks/sexual-rehabilitation-after-cancer/resources-1/patient-information-leaflets/patient-information-for-ostomates/love%20and%20sex%20with%20a%20stoma.pdf

Intimacy After Ostomy Surgery Guide. United Ostomy Associations of America, Inc. https://www.ostomy.org/wp-content/uploads/2018/03/Intimacy-After-Ostomy-Surgery-Guide.pdf?direct=1

Cesaretti, I. U. R., & Vianna, L. A. C. (2003). Sistema oclusor ou oclusor intermitente da colostomia: alternativa para a reabilitação da pessoa colostomizada. Acta Paul Enferm., 16(3), 98-108.

Fernandes, D. (2014). Sexualidade no doente ostomizado: estudo exploratório. Revista Onconews, 7(25). Retrieved from: https://www.aeop.pt/ficheiros/04760f0d54bc2bf761fbbd781fc8bd84.pdf

Maruyama, S. A. T., Barbosa, C. D. S., Bellato, R., Pereira, W. R., & Navarro, J. P. (2009). Auto-irrigação – estratégia facilitadora para a reinserção social de pessoas com colostomia. Revista Eletrônica De Enfermagem, 11(3). https://doi.org/10.5216/ree.v11.47203

Self-irrigation procedure. Retrieved from: https://www.youtube.com/watch?v=BTR9YcgyImY

Mulhall, J. P., Incrocci, L., Goldstein, I., & Rosen, R. (2011). Cancer and Sexual Health. Amsterdam University Press.

Reisman, Y., & Gianotten, W. L. (2017). Sexual Tools and Toys in Oncosexology. Cancer, Intimacy and Sexuality, 223–233. https://doi.org/10.1007/978-3-319-43193-2_28

Sexual Health – Health and Wellness | Colorectal Cancer Alliance. Retrieved from: https://www.ccalliance.org/colorectal-cancer-information/health-and-wellness/sexual-health

Kegel exercises for men. Retrieved from: https://www.youtube.com/watch?v=MJ7EfGu03-0

Kegel exercises for women. Retrieved from: https://www.youtube.com/watch?v=Wjb20SXIvA4

Sexual Health – Health and Wellness | Colorectal Cancer Alliance. Retrieved from: https://www.ccalliance.org/colorectal-cancer-information/health-and-wellness/sexual-health

Miranda, E. P., Taniguchi, H., Cao, D. L., Hald, G. M., Jannini, E. A., & Mulhall, J. P. (2019). Application of Sex Aids in Men With Sexual Dysfunction: A Review. The Journal of Sexual Medicine, 16(6), 767–780. https://doi.org/10.1016/j.jsxm.2019.03.265

Sexual Relationships and Cancer: Sexual Positions. (2019). MyHealth.Alberta.ca Network. Retrieved from: https://myhealth.alberta.ca/cancer-and-sexuality/sexual-relationships-and-cancer/sexual-positions

Lifestyle series – Love and sex for people with a stoma. Hollister. https://www.networks.nhs.uk/nhs-networks/sexual-rehabilitation-after-cancer/resources-1/patient-information-leaflets/patient-information-for-ostomates/love%20and%20sex%20with%20a%20stoma.pdf

Intimacy After Ostomy Surgery Guide. United Ostomy Associations of America, Inc. https://www.ostomy.org/wp-content/uploads/2018/03/Intimacy-After-Ostomy-Surgery-Guide.pdf?direct=1

Module 5

SexLab. Cognitive-behavioral treatment for Erectile Dysfunction (CBTED) – Treatment Manual

McCarthy, B. & McCarthy, E. (2022) Celebrating sexuality and aging. In B. McCarthy & E. McCarthy (Eds.), Couple Sexuality after 60 (pp. 169-180) Routledge.